Official State of Rhode Island website

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Children and Youth with Special Health Care Needs

Screening and Evaluations for Children and Youth with Special Healthcare Needs (CYSHCN)

Regular health screenings are an important part of keeping your child healthy. These routine tests help identify possible concerns before they become more difficult to manage. In Rhode Island, Newborn Screening and Follow-Up program checks every baby who is born in Rhode Island for things like metabolic and endocrine conditions, hemoglobin disorders, hearing loss, and developmental risks so families and doctors can treat or manage conditions as soon as possible.

As your child grows, their doctor will continue to check for different things at each yearly wellness visit. These checkups are a great time to ask questions or share any worries you have about your child’s health, growth, or development. If something doesn’t seem right to you, don’t wait, and don’t be afraid to talk with your doctor. Early action can make a big difference for your child’s future. See more about: How Children Learn and Grow.

Early Intervention and Child Outreach

Rhode Island offers programs to help families, including Early Intervention (ages 0-3) and Child Outreach Screening (ages 3-5). If you notice your child isn’t meeting developmental milestones, or if you have concerns about how they play, learn, speak, act, or move, talk  to your child’s doctor and ask if these programs could help you. Acting early gives your child the best chance to thrive. 

Developmental Screenings

Developmental screenings focus on how your child is growing and learning. They’re part of every well-child visit and include questions about your child’s behavior and development. These screenings help spot delays as early as possible so families can find the support they need. It is important to remember that every child grows at their own pace, and identifying concerns sooner leads to better outcomes. Learn more about developmental screenings on The Healthy Children.org website.

School Evaluations

When your child starts school, teachers and staff pay attention to how they’re doing through report cards, graded work, and daily feedback. If there are concerns about your child’s progress, you or the teacher can ask for a formal evaluation at any time. This evaluation is designed to find out where your child is doing well, where they might need extra help, and whether they qualify for special education services.

Under the Individuals with Disabilities Education Act (IDEA), schools have 60 days to complete an evaluation after getting your consent. This assessment assesses at many areas, including health, vision, hearing, social skills, academics, communication, and motor abilities. It is intended to be thorough; however, it also will keep the focus on your child as an individual, so that you, the school, and your child’s care team can make decisions together.

 When schools gather information about your child, it’s not just about grades or test scores. They also look at how your child gets along with classmates, handles frustration, and communicates with others at school. This gives everyone a more complete picture of your child’s strengths and where they might need extra support, so you can work together to help them thrive in and out of the classroom. 

For more on evaluations and what to expect, visit Understood.org’s guide or the Center for Parent Information and Resources.